Memory Replacement

One year ago today (Dec. 6th), I got the phone call that no parent ever wants to get. The 'get to the hospital right now because your kid isn't doing well at all' call. When I arrived at the hospital I ended up pacing the floor for over an hour before they would let me back to see her because 'there are too many medical personnel working on her'. Once again, I knew what they were saying, but I didn't fully process it. It began a two day vigil to see what would happen. She had several crashes/codes/whatever you want to call it over a 20 hour period(the most likely source of the brain damage). At the time I forced myself to take a picture solely because I knew one day I would want one.

Fast forward one year.

Today was Molly's follow up with her GI. I was hoping to hear that she was doing well, and would only need follow up visits once a year and labs done once a year. Maybe get clearance to attempt dairy and think about switching her off of formula. What happened was even better than that.

He looked at her, examined everything, listened to everything, then we talked about how we handled her 'reactions' and what we were feeding her. Then he told me that she seems to be 100% adapted (about 2 years earlier than we thought she would), and from his perspective she is a completely normal kid now!!!! He was shocked at how good we've been with food, then he told me that there are no restrictions moving forward! That we should work on weaning her to whole milk, and no food was off limits (but still take the introduction to each thing nice and slow to see if she'll react first). I couldn't believe it! I asked about the prevacid and he said to take her off as of tonight and see how she does.

If it was possible to float on air, I think I would have. In my wildest dreams the appointment didn't go that well. As we walked past the hospital gift shop, I decided to get a little Christmas decoration to symbolize the awesomeness of the day. And then I cried on and off the whole way home.

We did the bloodwork to test levels of vitamins a, d, e, b12, iron, and her blood count. A while later, Dr. Pohl called me himself to tell me that everything came back totally normal!!!!! We can take her off the vitamin D supplement (meaning her bones are no longer overly brittle) too! I hung up and started to cry.

If someone would have said a year ago that today Molly would be doing so amazingly well, I would laughed in their face and told them to dream on. It would be impossible not to recognize the multiple miracles we have seen in Molly's short life already. The irony of the date was not lost on me. I've decided I could not have asked for a better memory replacement for the day.